April 28, 2011
Rylee had her hematology appointment today at 1:30 p.m. with Dr. Morales. Danny took her and had her blood work drawn before the appointment to check her levels and had additional blood work drawn for her scope procedure on May 3rd. Her platelets are still ranging at 47,000-48,000. Dr. Morales wants to do a IVIG on her sometime after this scope and before the next scope. She will have to be hospitalized for the treatment. She will be hooked up to an IV for 8 hours a day for two days. Once she has the treatment she can go home. He seems to think that she has some antibodies floating around that are eating up all of her platelets. Unfortunately, it seems this is the only way to find out and treat the issue. Her spleen has gone down which is the good news but her platelets are still low.
Rylee is trying her hardest to handle all of this well. She is starting to become very irritated with her medical problems. She does not quite understand why she must continue to go to the hospital and see the doctors when she does not feel bad. This is way too much for an 8 year old to handle when all she wants to do is run and play. We are trying to find ways to help her cope. I am trying to find fun things for her to do in her condition (enlarged spleen). All she wants to do is be normal and not have me harping over the things she can not do. I am really praying that we get some good news after her next scope next week.
I love ya'll and am still praying. I can't imagine how hard it is to keep Rylee from doing her normal activities! She is certainly an active little girl :-) Shoot, I know I have trouble sitting still for an hour, let alone 8 hours!!! Much admiration to Rylee for conqueroring that feat!
ReplyDeletePraying for you guys and thinking about you all! Make sure to utilize the Child Life Specialists at the hospital. They can definitely help with coping strategies/skills.
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