It was another long day for us at the hospital. The last few times we were in and out quickly, but you can never predict what Will happen when you arrive. Our arrival was set for 7:00 am. We woke at 4:00, left at 5:35 and signed in at exactly 7:00 am. We were admitted to short stay and blood labs were drawn, normal checks on blood pressure and temp were taken, all bracelets put on and then the wait began. Platelets were at 44,000 and hemoc a orders said she was not to go into procedure unless platelets were at 75,000. This has not happened since this all began 2 years ago. Everyone was confused and it delayed the procedure time. Once all the kinks were worked out she was taken in at 11:10 am.
She walked into the procedure room with one arm around Dr. Monagus and one around Patches. After about 15 minutes in the waiting area Dr. Monagus was out talking to us about the results with a big smile in his face. Rylee had no varices to be banded. Her esophagus looked like a normal one and he is very pleased. He does not want to see us for 6 months!! Big milestone. Of course we have to watch for all the normal signs and symptoms but all in all GREAT!
I did ask Dr. Monagus about the Rex Shunt surgery regarding Rylee's case. This is the risky surgery that was recommended in the beginning stages of this illness. He stated that he would strongly not recommend this surgery for her because her body is shunting itself and she has improved every scope. Meaning, Rylee had a clot that dissolved, her veins rerouted themselves allowing blood flow to get to her liver (shunting itself) and the main issue is her spleen size and platelets at this point. This will never go away and we do not know what the future will bring. If she has more varices and she has a bleed, then we will be looking at this option possibly. Also, if for some reason she has other issues, by doing this surgery it would compromise future surgeries if needed. He did tell us that her spleen HAS SHRUNK. It moves as she grows, but it has shrunk. Her platelets are a constant issue. Danny and I are still trying to wrap our heads around all of this and process the information, but we take everything day by day and enjoy the good news when we receive it. Today was a good day all in all!
Rylee was in great spirits. She even completed one of the activity worksheets from the hospital that had us saying awe one minute and cracking up the next. She is a trooper and I am so proud of her for being so strong and brave!
Keep praying for continued improvement and healing! Thanks everyone!
Love,
Brandi
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