We decided to let Rylee have an early birthday this year due to her medical issues. With her spleen being so large the only "safe" play she can have with her friends is in a pool. My Aunt Sandy let us use her beautiful home and pool to host. She was so excited to be able to actually PLAY with her friends. Always makes my heart happy when she smiles.
She has her follow up with Dr. Monagus on October 7. Her blood work for September was ok, except her platelets are already at 50,000. Her next scope is not scheduled until November 21. This is a big scope for her! She started her new medicine that the Endocrinologist decided to put her on last week she will have a shot every 4 weeks in her thigh . Danny will not be here for the next shot, so wish me luck. Daddy is the needle comforter!! Well, really he is the "safe zone" PERIOD! Please continue praying for her to heal and continued strength for my family.
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Monday, September 26, 2011
Sunday, September 4, 2011
Endocrinologist results
I received a telephone call from Dr. Vargas, the Endocrinologist, on Friday regarding Rylee's stimulation test results. He said that the test was normal, which we are very thankful for, but that she will need to be started on medication due to her "other" areas of development. They are attributing this to her stroke. Hopefully this will help with the"teenage" attitude, etc. He will see her again in November for follow up.
She is looking forward to her birthday party Saturday. So very thankful to have such an amazing, supportive family to help! Since she cannot do activity with her friends besides swim, we want to say a very special thank you to Aunt Sandy for letting us use her pool and house!!! With everything my baby is dealing with she deserves to have a great time and party! She is still smiling, but is really tired of her "conditions"! She is definitly our little "Soul Surfer"!
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