Met with Dr. Monagus today so he could check Rylee since her last scope on June 9th. We were greeted by a student Dr. Who just so loved Rylee's Team Jacob shirt!!! She went over how Rylee has been doing and her blood work and then we waited for good ole Dr. Monagus. Rylee loves him! He was not very pleased with her platelet level. It is at 51,000 and has dropped from 82,000 since June 9. He gets worrisome when it starts getting back into the 40,000 range. He is going to pass along the lab work to the hematologist Dr. Morales and see if another lab needs to be done before her next scope on August 4. Normally we do labs upon admit the night before. Danny and I both think he will discuss proceeding with the IVIG procedure that was originally scheduled May 30 but never went forward. I talked to him about surgery and what we are doing to get that rolling and he is looking into it for us as well. We also discussed her stimulation testing and her weight and height. My little girl is eating too many cookies at Nana's and with Daddy. I'm sure this won't go over very well. Since she can not be very active with her spleen it makes it difficult for her to exercise her cookies off. He said he spleen shifted up again so it is more underneath her rib cage which is great but it is still very very large.
On another note we are looking so forward to spending time with our family at her nanan and uncle cam's coast house on the bay in Bay St. Louis. We will celebrate Andrus Mac's(my peanut) birthday, swim, lounge, boat and fish all weekend. We so need this getaway and I'm thankful to Shannon and Cam for letting us come stay with them. Nothing betterhanging with my family on the water!!! Dr. Monagus told us to have fun, be careful and watch out for fish hooks while fishing! Danny bought her a wet suit, life jacket, fishing hat and she is determined to have Uncle Matt take her to get a pole! Can't wait til Friday!
My baby deserves some fun!!!
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